Firefly Sisterhood, 10 years 2014-2024


Privacy Policy


The mission of Firefly Sisterhood is to facilitate and foster intentional one-to-one connections between individuals diagnosed with breast cancer and those already on the journey. Our services (“Services”) include but are not limited to:

  • The Firefly Sisterhood One-to-One program (“Program”) to help individuals who are diagnosed with breast cancer connect with volunteers who are breast cancer survivors;
  • Educational webinars, seminars and events;
  • Firefly Sisterhood newsletters and website.

Firefly Sisterhood is committed to responsible information handling practices. This Privacy Policy (“Privacy Policy”) applies to Firefly Sisterhood’s collection and use of personal information and non-personal information that Firefly Sisterhood may obtain when you contact us, visit our website, or use our Services. In this Privacy Policy, we sometimes refer to Firefly Sisterhood as “we” “us” or “our,” and to individuals who visit website or use our Services as “you” and “your”. We refer to women seeking support who participate in our Program as “Support Seekers” and to breast cancer survivors who serve as mentors in the Program as “Peer Mentor Guides.”

By visiting our website at or using our Services, you consent to the information practices described in this Privacy Policy. Firefly Sisterhood reserves the right, in its sole discretion, to modify, alter or otherwise update this Privacy Policy at any time. You will be notified of changes to the Privacy Policy via a notation next to the link to the Privacy Policy from the main page of the website stating that the Privacy Policy is new and the date on which it was updated. The last date on which the Privacy Policy was updated was March 2024. By continuing to use this website after changes to the Privacy Policy are posted, you agree to these modifications, alterations and/or updates.

Information We Collect

You can visit and browse this website without telling us who you are or revealing any Personal Information (as defined below). If you choose only to look at the website and do not wish to participate in the Program, you need not provide any Personal Information.

We collect personal information to provide our Services as well as some non-personal information about visitors to our website. The term “Personal Information” generally includes but is not limited to: (1) information that can be used to determine, distinguish or trace an individual’s identity, such as name, email address, address, phone number, age, or date of birth, and (2) any other information that is linked or linkable to an individual, such as medical and employment information. We may obtain Personal Information about you only if you elect to give us that information. We may also collect information or data in a form that does not, by itself, permit us to associate it with any specific individual. For the purposes of this Privacy Policy, we refer to this as “Non-Personal Information.” Non-Personal Information includes but is not limited to information we collect regarding visitors to our website to help us provide more useful information to visitors and Program Participants, and to understand which parts of and our Services are of most interest. We collect Personal Information and Non-Personal Information in the following ways:

We may request Personal Information to participate in the Program, provide you our Services, enable you to purchase goods or services available on our website, or donate online. Types of Personal Information we may ask you to provide may include your name, address, zip code, telephone number, occupation, email address, credit card information, and/or breast cancer diagnosis. We use a third-party application for storage of your Personal Information and online donations and do not keep any credit card information or other Personal Information on our website. To learn more about the privacy and security practices of our third-party application, Salsa Labs, please visit:

To participate in our Program, we ask you to complete an application online that includes some of the above Personal Information. If you apply to participate in the Program, to help us determine if you can participate and match you with a Support Seeker or Peer Mentor Guide, we may contact you to request additional Personal Information including but not limited to confirming your age and that you are over 21, confirming that you have been diagnosed with or are a survivor of breast cancer, the stage of breast cancer, your marital status, and the number and ages of any children. We may also collect feedback, including Personal Information, from Program Participants and others who apply for or use our Services to help us improve and tailor our Services to meet your needs.

When you apply to participate in our Program, we reserve the right to ask about your personal history including whether you have been convicted of breaking and entering, fraud, theft, abuse of a child, spouse or vulnerable adult, a crime involving violence, including rape, sexual assault, or homicide; or a felony drug-related offense. If you answer in the affirmative, with your prior consent, we will perform or engage a third-party provider to perform a background check and will use the background check results and additional information that we may request from you to determine whether we can accept you in the Program. Firefly Sisterhood reserves the right to not to accept an applicant for the Program for any reason, including refusing a background check or having a criminal conviction.

Cookies and Other Technologies; Do Not Track

When you visit our website, we use “cookies” and other technologies to collect data that allows us to understand and improve the usability of our website. Cookies are files sent to your browser and stored on your computer. If you visit our website, we will send a temporary cookie to determine if your browser accepts cookies. This cookie contains no personal data and is discarded when you close your browser. If you do not want us to send cookies to your browser, you can use your browser options to reject cookies or notify you when a website tries to put cookies into your browser. If you reject cookies, there may be features of our website and Services provided on our website that you will not be able to use.

We may also use some cookies or other technologies owned and operated by third parties, such as analytics providers or apps that help our site to function. We are not responsible for the privacy policies of those third parties and do not control how their cookies or other technologies operate. To learn more about how our analytics provider, Google, handles your information, please refer to

The website responds to Do Not Track signals issued by your browser by stopping Google Analytics tracking. To learn more about your choices regarding online tracking, please visit these sites: and

Google Web Fonts

For uniform representation of fonts, this website uses web fonts provided by Google. When you open a page, your browser loads the required web fonts into your browser cache to display texts and fonts correctly.

For this purpose, your browser must establish a direct connection to Google servers. Google thus becomes aware that our website was accessed via your IP address. The use of Google Web fonts is done in the interest of a uniform and attractive presentation of certain plugins used by our website.

If your browser does not support web fonts, a standard font is used by your computer. Further information about Google’s handling user data can be found at and in Google’s privacy policy at

Unsolicited Information and Submissions

If you choose to use one of our contact email addresses to send us any information other than that listed above under “Information We Collect,” information you provide subject to the Program Agreement, and information we request from you or you provide to us as part of your participation in the Program, we are not responsible for keeping that information private. For example, if you send us an unsolicited idea for making improvements to our website or the Program by email, we would not be responsible for keeping that information private. Such information is called a “Submission.” We do not collect Submissions constituting confidential information from you, except to the extent that you submit them to us via email or other means. Firefly Sisterhood does not want to receive confidential or proprietary information from you through the website, email, or other means. Therefore, any Submission sent to Firefly Sisterhood will be deemed NOT to be confidential. By sending Firefly Sisterhood any Submission, you grant us an unrestricted, irrevocable and fully paid-up license to use, copy, reproduce, publish, upload, post, transmit, distribute, publicly display, perform, modify, create derivative works from, and otherwise freely use, that Submission. You also agree that Firefly Sisterhood is free to use any ideas, concepts, know-how, or techniques that you send us for any purpose, without compensation of any sort. However, we will not release your name or otherwise publicize the fact that you submitted materials or other information to us unless: (a) we obtain your permission to use your name; or (b) we first notify you that the materials or other information you submit to a particular part of the website will be published or otherwise used with your name on it; or (c) we are required to do so by law.

How We Use the Information We Collect

We use Personal Information collected online to provide and administer our Program and Services, in order to comply with a legal obligation, to enforce the Program Agreement, to protect our rights or the rights of other parties such as Program Participants, and to provide information to you, such as sending communications and newsletters. We will not sell, disclose, or rent the Personal Information we collect to any third party for their use in marketing or selling their own products or services.

Firefly Sisterhood will retain and use your Personal Information for the purposes for which such Personal Information is collected. Firefly Sisterhood will establish minimum and maximum retention periods based upon the type of information collected (i.e., sensitivity), the intended purposes, and as otherwise may be legally required.

Disclosure to Third Parties

Firefly Sisterhood may need to share Personal Information with third parties in limited circumstances. For example, we may provide Personal Information to third parties to perform services such as informing you about upcoming events, volunteer opportunities, fundraising and partner-related product opportunities benefiting Firefly Sisterhood, breast health/breast cancer information or processing credit card payments or maintaining or hosting our website or content available on our website.

If a third party is engaged for these purposes, such third parties shall be obligated to maintain the confidentiality of Personal Information and are not authorized to use Personal Information for any purpose other than providing those services.

It may be necessary for Firefly Sisterhood to disclose your Personal Information, if we determine that law; legal process or litigation requires disclosure. We may disclose your Personal Information, if we deem it necessary in order to comply with a legal obligation, enforce the terms of the Program Agreement, or to protect our rights or the rights of a Program Participant.


Our website uses plugins from YouTube, which is operated by Google. The operator of the pages is YouTube LLC, 901 Cherry Ave., San Bruno, CA 94066, USA.

If you visit one of our pages featuring a YouTube plugin, a connection to the YouTube servers is established. Here the YouTube server is informed about which of our pages you have visited.

If you’re logged in to your YouTube account, YouTube allows you to associate your browsing behavior directly with your personal profile. You can prevent this by logging out of your YouTube account.

YouTube is used to help make our website of interest to users related to specific content. Further information about handling user data, can be found in the data protection declaration of YouTube under

Security Measures We Use to Protect Personal Information

We take your right to privacy and the security of your Personal Information very seriously. We take industry standard measures to safeguard and protect your Personal Information from unauthorized access. Unfortunately, no data transmission over the Internet or any wireless network can be guaranteed to be 100% secure. As a result, while we strive to protect your Personal Information, you acknowledge that: 1) there are privacy and security risks to the Internet which are beyond our control; 2) the security, integrity and privacy of any and all information exchanged between you and us through our website cannot be guaranteed; and 3) any information or data may be viewed or tampered with by a third party while in transit. Our security measures include computer safeguards and secure files and buildings. Firefly Sisterhood uses Secure Socket Layers (“SSL”) encryption and a web application firewall to protect Personal Information that you transmit to us in the application on our website. Our CRM provider uses reasonable security measures to protect Personal and Non-Personal Information that is maintained on our CRM provider’s servers, including technology, physical, and administrative security measures to limit access and use to authorized persons, and prevent an intruder from obtaining the information. To learn more about the privacy and security practices of our third-party CRM provider, Salsa Labs, please visit:

However, these measures standing alone are not sufficient to ensure the security of your Personal Information. It is also important for you to guard against unauthorized access to your passwords and unauthorized use of your computer.

External Links

We do not endorse and are not responsible for the information practices or privacy policies of websites operated by others that may be linked to or from this website. If you decide to access a third party’s website that may be linked to or from this website, you should consult that website’s privacy policy.

Business Transition

The information covered by this Privacy Policy is an asset of Firefly Sisterhood and will become part of our normal business records. If we or a substantial part of our business is sold or otherwise transferred to a third party, such as a legal successor in interest, your information may be transferred to that third party.

Updating Your Information

If any of the Personal Information you submitted to our Site is inaccurate or outdated or otherwise needs to be changed, please contact us at and we will use reasonable efforts in our control to revise that information.

You may ask to have the information on your account deleted or removed; however, because we keep track of past transactions, you cannot delete information associated with past transactions on this Site. In addition, it may be impossible to completely delete your information without some residual information remaining because of backups.

Regarding Children, Teens and Individuals Under Age 18

Firefly Sisterhood is very concerned about protecting the privacy of children and teens. We do not intend to collect any Personal Information from anyone under age 13. If a parent or guardian learns that a child under 13 has provided Firefly Sisterhood with Personal Information, the parent or guardian of that child should contact us immediately at so that we can delete this information from our files.

Individuals under age 18 are not eligible to participate in the Program unless they have parental consent. However, individuals between ages 13 and 18 who have been diagnosed with breast cancer are eligible to use our other Services without parental consent.

Your Opt-Out Choice

If you have applied or registered for the Program or other Services, Firefly Sisterhood may from time to time send you promotional information about our Services that we think you may find useful. If you wish to opt-out of receiving promotional mailings or email communications from us, you may do so by clicking on the unsubscribe link in our email communications to you or by emailing your request to Firefly Sisterhood at Please note that opting out of receiving promotional mailings or email will not affect your receipt of Service-related, transactional, or legal communication via mail or email in accordance with the terms of this Privacy Policy.

Applicable Law

This Privacy Policy shall be governed by, and construed and enforced in accordance with, the laws of the State of Minnesota, without giving effect to any principles of conflicts of laws. You expressly agree that the exclusive jurisdiction for any claim or action arising out of or relating to this Privacy Policy, your participation in the Program or Services, or your use of this website shall be filed only in the state or federal courts located in the State of Minnesota, and you further agree and submit to the exercise of personal jurisdiction of such courts for the purpose of litigating any such claim or action.


If you have any questions regarding this Privacy Policy, please contact us at

March 2024